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About Us

Shortly after Emma was diagnosed with IS, we always said to ourselves that we had to do something to ensure that future parents and children would be able to have a better outcome and path than what we did.

 

As for the name, we came up with Emma IS based on the acronym IS (Infantile Spasms) and the fact that Emma is who Emma is...she has no benchmark to go against - she is Emma.

 

Proceeds generated from your support go towards research projects that help combat Infantile Spasms at The Hospital for Sick Children, as well as other families who are going through a similar battle.

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Mission

To increase awareness for Infantile Spasms while advocating for early detection and treatment;

to drive research initiatives to better understand and treat Infantile Spasms.

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Thank you to everyone for your ongoing generosity and support.
​None of this would be possible without you!
​Registered Canadian Not For Profit Organization | #1379369-9​

© 2025

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